Week 11 – Two steps forward one step back no comments
Eli’s skin is the worst its ever been. He has open cuts all over his poor little body. He had a bath Tuesday night and I was able slough a lot of skin off to make him more comfortable. He has slept through the night 3 times this week despite his skins condition. We are so grateful for those nights. We have been doing the probiotic for a week and have seen improvements with the skin on his face. I had to cut his hair shorter because of the eczema at the base of his neck… it is a horrible home haircut and I feel bad that he has to walk around sporting it. We’ve had a lot of company/visits the last few days and Eli has been nothing short of happy. We say all of the time how lucky we are that he has such an easy way about him. Speech is really coming along, we had a meeting with Eli’s preschool team and filled them in on hos situation. We feel confident that they will care for Eli’s TSW while he’s in their care.
And he’s still smiling, God I love this boy!