Strength   no comments

Posted at 3:07 pm in General

It simply amazes me how you can be covered from your neck to your toes and be so uncomfortable and keep a smile on your face. Eli has this undeniable strength to go on about his day and act like little boys do. Where does that come from? Eli had a pretty good nights sleep, we have switched to Vasoline for the time being. It spreads easy and is a hell of a lot cheaper than some of the “miracle cures” that are out there. We are waiting on Eli’s sleep suit to arrive from London. There is only so much we can do to keep him from scratching. We just want our boy to have a fighting chance at a future with healthy skin. It sounds so simple, and for most parents luckily you will never have to give it a second thought. As for myself, I just need a fraction of the strength that E has to continue to do what is best for him.  Most days it’s hard to come by. Funny that I’m supposed to be the one teaching him in reality, he’s teaching me.

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I love this face. So grateful for his amazing spirit.

 

Written by Shannon on February 7th, 2014

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