Breakdowns no comments
This week has been tough. I’ve been very emotional, the smallest things have set me off. I look at Eli’s skin and I know that we are doing the right thing. That doesn’t stop me from thinking that this is my fault. How could I let this happen to my little boy? I feel like I have to defend myself as to why I’m letting Eli suffer when it would be so easy to put steroids on him to “clear” his eczema. Because this is just recently recognized by the medical community I need to be ready to argue my side of TSW. This terrifies me, I have to make the doctors understand what steroids have done to our son. I’m so grateful for my friend Pam who has been helping me along the way. She has been going through TSW with her son and has given me great advice and support.
Eli has been seeing a speech teacher since November, progress is slow. He can’t tell us what he’s going through. I feel like he has regressed since January 1st when we stopped steroids. It makes sense, his little body is overwhelmed with skin issues. Eli has come out with full sentences before, with clear and concise words. Those moments are few and far between. This week he’s been saying “I love you” a lot ( this triggered a breakdown ) we are praying that as his skin gets better the speech will improve. Just another bump on our journey.
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Look at that face… He loves Dada’s boots