Archive for April, 2014

Week 16 – Who needs sleep?   no comments

Posted at 6:45 pm in General

Eli’s new routine is to go to bed at 8pm and wake up at 12:30am. At this point we just bring him downstairs and put on Leap Frog. He drinks his milk and carries on a conversation like its the middle of the day. He generally stays up until 2:30am and goes back to bed, falling asleep by 3am. The itching has been so bad. Benadryl, Zyrtec and generic allergy meds are no longer having an affect on him. We are at a loss, so for now we are all sleep deprived. On the bright side Eli has started eating new foods! Grilled rice cheese sandwiches, baked ham, turkey and cantaloupe. This may not seem like a big deal to some people but for us it’s huge. He’s never had a big menu but for us to be able to add so many new items this week has been a relief. Eli’s neck is the biggest trouble spot this week.

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Bubbles with Kyle & Dada wearing his pj’s so he can’t scratch!

Written by Shannon on April 23rd, 2014

Week 15 – Mark Mincolla   no comments

Posted at 12:00 pm in General

Today I took the boys to see Mark Mincolla in Cohasset. My friend Pam had recommended that we see him, her son Ryan saw results shortly after seeing him. As we were walking into his office he said to me “I bet he has a soy allergy” after some testing, we found that statement to be true. Poor Eli now has to drink Rice milk. We also had to switch him to rice pasta – which is disgusting. It’s so hard to get a picky eater to try new things ( he’s just like his dad! )  We are glad to be able to add new foods to his diet. So now we are working toward healing Eli from the inside out, we are hopeful that in the weeks to come we will see results.

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Written by Shannon on April 16th, 2014

Week 14 – More of the Same   no comments

Posted at 2:26 pm in General

I am so grateful that the nicer weather is coming, we were able to get outside quite a bit this week. We went to the park for about 2 1/2 hours the other day, when we got home Eli had a 5 hour nap! I wasn’t going to wake him because sleep has still been erratic, so if he naps we let him be. Next Wednesday we have our appointment with Dr Mark Mincolla, he has been on Dr Oz and is knowledgeable on TSW. Eli’s skin is still a mess this week. We have been doing Epsom Salt baths as often as possible.

 

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Written by Shannon on April 10th, 2014

Week 13 – Going in Reverse   no comments

Posted at 1:42 pm in General

It is so frustrating to have Eli’s skin clear one day and have him wake up the next day looking terrible. He has been really dry and scaly this week, no amount of Vaseline seems to help. His sleep has still been erratic too, most days he doesn’t nap and falls asleep immediately when we put him to bed. Two hours later he will be scratching and crying. We upped his Zyrtec to a full dose ( 10 mg ) in hopes that it would help – it hasn’t. We had to buy Eli one piece cotton pj’s to wear during the day to keep him from getting to his skin. We call it his “day suit” I can’t say enough how lucky we are that he is such a good kid. His neck is the worst of his skin right now, which sucks because we can’t cover it. We try as much as possible to stop him when he starts scratching it but we don’t always get there in time. He had slight oozing yesterday afternoon because of it. Eli is doing great with his speech, he has more words and phrases every day. He went to James’ Birthday party on Sunday at Pump n’ Jump and his skin was fine, he had a great time. I did notice that when he is active and sweats his skin doesn’t itch as much. We have 2 Birthday parties this weekend, Jack’s will be at his house and Ava’s will be at the bowling alley. I’m sure the boys will have a blast!

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Written by Shannon on April 3rd, 2014